Why did between 30-50 Bikers gather at a small bar in Dacono, CO on a gorgeous Saturday? They were there for a little man named Riley who is afflicted with a disorder known as PKAN.
What is PKAN?
Pantothenate kinase-associated neurodegeneration (PKAN) is the most common type of neurodegeneration with brain iron accumulation (NBIA), a rare neurodegenerative disorder characterized by progressive extrapyramidal dysfunction (dystonia, rigidity, choreoathetosis) iron accumulation on the brain and axonal spheroids in the central nervous system. Prevalence is estimated at 1-2/1,000,000
These riders came from all around to meet their new hero and brought small gifts and raised money to help relieve some of the financial burden for the family. They all came together to celebrate life with the family of Riley. What an amazing reason to go for a beautiful ride in wonderful, colorful Colorado.
By John Root